Life with Tardive Dyskinesia

Originally posted on Everything Matters:
I’ve posted a couple of times about having TD. It is an awful debilitating, crippling and disfiguring disease caused by iatrogenic injury. I just discovered the National Organization for Tardive Dyskinesia so I thought I would share. There is very little accurate or clear information about this disease. I have…

Anti-social media

Once upon a time I felt so exposed I deleted all my social meda accounts with multiple 1000s of followers. I also deleted all my videos with tens of thousands of views. I’m a nobody now. Thoroughly. It took about 5 years of decidely anti-social social media use. I didn’t mean to alienate anyone. I only needed to protect myself while seriously ill and healing.

the whole shebang

oh, I dwell there, alright and I get to feeling alone and weary too. I am willing, able and need to celebrate the whole spectrum of human experience, here. Grateful for it too. (click through for the rest of the post)

communication, paradox and belief

When people are incapable of understanding nuance (grey areas, paradox, nonduality, whatever you want to call it) they are generally incapable of communicating on difficult topics. Generally anyone attached dogmatically to any particular belief have trouble opening to conflicting or even complimentary information. When one comes up against dogma in another it seems best toContinue reading “communication, paradox and belief”

Platinum rule (scroll down for thoughts)

the last two are the only ones that go far enough. the others assume that what is good for you is good for everyone. That is simply not always the case. (think neurodiversity, think diversity in general) The golden rule must include imagination for what we might not have ever experienced so that we can learn what others actually need…when it’s not what we needed. Otherwise we can cause harm with what we imagine are good intentions. Assume nothing and listen. Learn. Behold the OTHER.

Micro-organism illnesses (Lyme disease and many others less popularly defined)

(a lot of chronic illness is similar in some fundamental ways…symptomatology varies and crosses over within the lifetime of those who deal with chronic conditions regardless of diagnosis. Believing one has something specific is detrimental to getting well quite often and most certainly was for me.) that said: it’s also true that I got mostContinue reading “Micro-organism illnesses (Lyme disease and many others less popularly defined)”

Tardive dyskinesia and thoughts from the mindful healing process….

Hello again. I have lyme disease (for which I have mostly used Buhner inspired treatments) and I also have tardive dyskinesia, a grave symptom associated with pharmaceutical injury. It seems to me that the TD is the body trying to rid itself of the invading micro-organisms and environmental toxins like pharma and heavy metals, etc.Continue reading “Tardive dyskinesia and thoughts from the mindful healing process….”

latest adventure

Last year my life was altered in drastic ways. Certainly, all our lives were, given the changes we’ve all had to make due to the pandemic. For me things got even crazier. Just as we were given “stay at home” orders I had to leave my house. I developed a severe mold allergy, and certainly, the mold was a large part of why I’ve not gotten healthier faster. I also have other complicated micro-biome (infection) issues secondary to the brain injury that continue to challenge me in ways that are hard to talk about. In any case I had to leave my home as “stay at home” orders were issued. I started by living in the backyard for 6 months and then when that became impossible I simply had to leave. I started driving cross country. I hoped to get back to California after 17 years, if only for a visit. I have been dealing with drug injury and complications from that drug injury for that long! …..


Something went wrong. Please refresh the page and/or try again.

Follow My Blog

Get new content delivered directly to your inbox.