I’ve never regretted giving up on getting diagnosed. What I’ve learned as an undiagnosed chronically ill person (with auto-immune and “lyme disease” like stuff) is that all chronic illness is similar in fundamental ways. Believing one has something specific is detrimental to getting well.
I’ve spent a lot of time in chronic illness scenes and seen massive amounts of cross-over. Very few people know this or want to acknowledge it but slowly I meet more that do. We venture forth learning to listen to our own unique bodies. Learning from everyone with who suffers while leaving dogma behind.
I like the term AFFLICTION . A good term for the kaleidoscopic nature of chronic illness. There is no minimization of the real physical manifestations. We’re not imagining it. They are nervous system and micro-biome issues and they will manifest in endless ways. They cannot be put in boxes.
Interesting tidbit: I was too sick to go to the doctor when I was at my worst (a period of years). What sort of medical system makes it impossible for very sick people to be seen? OURS does. This should be enough to see that it has nothing to do with getting help and healing.
I am free.
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