Tardive dyskinesia update

The tardive dyskinesia “movements” have greatly diminished in the last year. That is only one, very imprecise symptom. TD is far more complex than just the “movements.” I find it unfortunate that the tics are what we concentrate on that because it’s misleading. Western Medicine simply calls it a “movement disorder” without ever making it clear what an ugly and disabling disease it very often is.

Those who suffer with TD know that this is a crippling disease for many reasons other than just “the movements.” Still it’s a measure that certainly means something and I’ve been without movements up to 50% of the time in the last couple of months following years of movements around the clock, nonstop, all the time. There have been other significant improvements too and I’m still frustratingly unwell in many ways too.

Yes, it’s been getting “better.” Even if what that means is unclear, even to me. It’s not because of any one thing and so I can’t tell you “what I’ve done.” It’s because of everything I’ve done. And I mean everything. My life is lived in constant 24/7 mindfulness and it’s a longterm practice and I don’t get any breaks.

I developed a working thesis about my process when I came off psych meds. It’s called Everything Matters, like my web site. Everything I do is part of mindful living…that’s why it’s not really something anyone can copy nor is it something that can be taught. …

It’s my process…done in mindfulness…the mindfulness part is a method and that can be worked on by anyone and it will always be a unique and individual manifestation.

The details, the herbs, the diet, the medications, the exercise, the meditation, the therapeutics of all kinds are all going to be different depending on what is right at any given time as the person learns to listen to their body.

I respond to my body in every moment and it’s as much of a mystery to me as it is for anyone else what Im going to do in any moment.

I don’t follow directions or do any protocols other than learning to listen to my body and respond to it now. I do think it’s a process that can be helpful for anyone but it’s not a quick fix…that is for sure.

Since November of last year I began a pharmaceutical onslaught of Lyme associated antibiotics and antiparasite drugs.

I do not take them as prescribed as the TD does not allow that. I have, however taken them as needed and with lots of research to make sure what I was doing was within reasonable parameters for safety. I have done my own thing with these very potent and sometimes dangerous pharmaceuticals.

I also take many herbs and other supplements also in rotations that only my body knows (I’ve developed a massive internal database of therapeutic substances from all medical systems around the world) TD seems to require constant change and a readiness to meet the body in that change. I did not tolerate pharmaceuticals for many years and did not take any at all.

I remain wary of all pharma. The fact is, however, that these very specific pharmaceuticals used for long-term chronic multiple systemic infections have been, not only necessary, but clearly helpful. My body has been very clear about how I should take them and I have had no issue doing it my way. I learned the hard way to never trust an MD over what my body knows.

TD is a monster weird symtom of a nasty and hellish biofilm in my experience…disintegrating that biofilm is no easy or straightforward thing.

My diet is also an act of deep mindfulness and food is just like herbs and supplements (what do I need now?) I love food and know the traditional foods of many cultures now.

My movement and exercise are also all done in mindfulness…I bring yoga into every minute of my life…when I’m online matters, for example. I often need to stay away from the screen and so when I watch TV or use the phone or the computer are all done as my body allows.

The process I started on Everything Matters, continues.

A conversation with Will and Monica, Lyme and Dyskinesia

more info:

MDs, systemic infections and such (Lyme and Tardive Dyskinesia) – Horowitz protocol

at Mad in America. Tardive Dyskinesia, Chronic Lyme Disease, and Infection – Mad In America

More on Lyme
More on Tardive Dyskinesia

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